I Love Social Media!

I love social media! I find it a great support tool. I’ve “met” lots of fellow M.E. sufferers through Twitter and Facebook. It’s great to have a chat and to know that you are not alone. You can respond in your own time, it’s not like having a conversation and finding your energy drain away. You just respond when you find the energy to do so.

So what has prompted this post? Well I’ve been chatting to Rebekah on and off for a while now. Today she posted about a new treatment she is trying to help her M.E. called Manual Lymphatic Drainage (MLD). If you want to check out her blog it’s http://freedomfrommeandfibro.blogspot.co.uk/ .

I had never heard of it before but have been told in the past that I have “lymphatic congestion”. My GP at the time laughed when I told him this….needless to say he isn’t my GP any more. My glands are constantly swollen and sore….could this MLD be a solution?

Within half an hour I was on google finding the nearest therapist and I’m now booked in for the end of the month. Rebekah has found a difference from it and that’s enough for me to give it a go. I’ll be honest with myself,as I have been with all the many other treatments I have tried over the years, and assess if it’s making any difference. The way I see it though it’s worth a shot.

So if you are at home, feeling low, lonely, helpless…if you have that little bit of energy, pop on to social media and chat to folk who are in similar circumstances. It can really help you feel less alone…and you never know you might just find something new to try.

Fingers crossed!

Rhoda sig

 

Keep Smiling…

This week has been a challenge. Pain has escalated and I’ve had to up my painkillers, but even with that the pain just won’t diminish.

I’m used to pain. I reckon I’ve built up a fairly good tolerance to it. The thing is that in the past suffering from so much pain would have sent me into a dark place. I’d hide from the world and feel sorry for myself. I’d catastrophise and think “I’ll never get better”.

This week has been different. I’ve noticed a big change in the way I’ve dealt with the pain. Yes I’ve had some moans (just ask hubby) but I’ve also been a lot more positive. It hasn’t even felt like an effort, it’s just sort of happened. I’ve accepted that the pain is bad, that I need to up my painkillers and that I will need to sleep even more than usual.

It feels good to be able to deal with it. I’m proud of myself. To be honest it’s made it a bit easier to deal with the pain and its effects when I’m not surrounded by black clouds.

So I’m going to keep plodding on, staying positive and I’m sure I’ll get there in the end (wherever “there” might be).

Keep smiling….it sounds cheesy but it does help.

*signs off to snooze*

love,

Rhoda sig